Top > Health > Conditions & Diseases > Neurological Disorders > Muscle Diseases > Muscular Dystrophies
Muscular Dystrophies
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  • Becker Muscular Dystrophy Information Exchange - Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
  • DMD Options - Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
  • National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
  • MDA Ride For Life - Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
  • Living For Today, Preparing For Tomorrow - Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
  • Duchennes - Provides links to medical and non-medical organizations and people with Duchennes problems.
  • A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
  • General Practice Notebook - Duchenne muscular dystrophy - Clinically-oriented information.
  • DoctorBach.com - This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
  • Muscular Dystrophy Campaign - Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
  • DMD Information and Resources for Teachers - Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
  • Duchenne/Becker Muscular Dystrophy - Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
  • FSH-MD Support Group - Provides support for those with Facio Scapulo Humeral and their carers.
  • DMD Pioneers - Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
  • DMD Information - Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
  • NINDS Muscular Dystrophy Information Page - Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

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