- The Alkaptonuria Society - Information about this genetic metabolic disorder for patients and professionals. Includes an FAQ, and a registration page for sufferers.
- The Williams Syndrome Foundation - Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.
- PiXiE - Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
- Genetic Interest Group - Information about this umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
|
